Tafamidis Price: A Treatment for a Rare Genetic Disease Available in Tanzania
Introduction
Tafamidis is an oral medication that has been showing promise in treating patients with transthyretin amyloidosis (ATTR), a rare genetic disease that affects the heart, nerves, and other organs. The drug was approved by the U.S. Food and Drug Administration (FDA) in 2019 and has since become available in Tanzania.
What is ATTR?
ATTR is a rare genetic disease caused by mutations to the transthyretin gene. This gene helps produce a protein called thyroxine-binding globulin (TBG), which carries thyroid hormone through the bloodstream. In patients with ATTR, however, abnormal proteins produced by mutated transthyretin genes accumulate as amyloid fibrils in different tissues of the body.
This accumulation can lead to several health problems such as cardiomyopathy (heart problems) or polyneuropathy (nerve damage). Symptoms of this disease usually start appearing after 30 years of age.
How Does Tafamidis Work?
Tafamidis works by stabilizing transthyretin tetramers – four molecule structures that keep individual proteins together. The medication prevents them from dissociating into abnormal monomers which would otherwise form harmful protein deposits causing diseases like ATTR.
Availability of Tafamidis in Tanzania
The Tanzanian government recently made Tafamidis treatment available for free under its National Health Insurance Fund. Patients who have been diagnosed with ATTR can now access this medication at select medical centers across the country.
However, it should be noted that availability may vary depending on location within Tanzania and patient diagnosis / need than standard supply chains may not fit well enough yet, impacting on price point accessibility.
Pricing Information
According to Tanzanian Price’s research team , one box containing 10 capsules costs around TZS 4,000,000 – TZS 5,500,000 (approximately USD 1,725 – USD 2,367). It is important to note that the price may vary depending on the location of purchase and pharmacy’s policy.
Conclusion
Tafamidis offers hope for patients with ATTR in Tanzania by providing an effective treatment option. Though costly compared to other medications on the market , it will be worth further research efforts into how Tafamidis might become more accessible especially when considering patient benefit vs cost of care. Patients who think they may have symptoms of a genetic disease should consider visiting their healthcare provider or medical center for further testing.
FAQs
What is the cost of Tafamidis in Tanzania?
The cost of Tafamidis may vary depending on various factors such as the dosage, location, and availability. However, it is generally expensive due to its rare treatment nature. In Tanzania, patients can expect to pay a high amount for ongoing treatment with Tafamidis.
Is Tafamidis covered by insurance in Tanzania?
Tafamidis is not commonly covered by insurance plans in Tanzania due to its expensive nature and rarity as a treatment option for genetic diseases. Patients should consult their specific insurance plan or healthcare provider to see if they are eligible for coverage.
How long does one have to take Tafamidis?
The duration of time that someone will need to take Tafamidis varies depending on the severity of their condition and how well they respond to the medication overall. Your doctor can provide guidance on when it is safe to stop taking this medication or when an adjustment might be necessary based on your individual needs and health status.